My Bipolar Child: a whole new world

Feature, Health — By admin on June 12, 2009 at 7:41 am

Since I launched this site I have not written about adoption and my family much. I think some of you are probably missing out on the joys that our new son has brought to our lives and many more of you are losing out on the lessons we are learning from the trials our older son brings to us each day.

Our oldest AJ is a very complicated child, one who from infancy probably baffled the Russian physicians. I know that he has confused just about every physician he has seen in the States. Hell, he confuses me and I live with him. In fact, I often don’t know which AJ will be joining me in the morning…will he be complacent, angry, frustrated, giddy, sad or anxious?

Or will he just be?

I write about my son often because there are parents everywhere in the same battles against childhood mental illnesses and families across the country still reeling from the aftereffects of institutional life. Will my son ever be able to grasp that I write about his medical and emotional issues and not just about adoption? I don’t know, but at this point in his life I feel that sharing his journey benefits too many families to not share.

So, what, you ask, is such a big deal?

Since Gus joined our family, AJ has been a mess. Then again, he has always been somewhat of a jumble, right? Sure. But this time I mean really a mess…manic, crazy, sleepless, aggressive  and unpredictably violent. A whirlwind of highs and lows.

We don’t take his behaviors lightly and we always, always act quickly.

We initially increased his Risperdal, an anti-psychotic that he started last year, but that did very little, so we returned to the list of current diagnoses and chose one to  treat (well, the psychiatrist did). We tried ADHD medications next.

Wrong choice.

Apparently in children with neurological issues like AJ’s, stimulants tend to work well; however, when the neurological issue is misdiagnosed, the stimulant will  backfire and have negative side effects.

Example: 65 percent of the children in our study had hypomanic, manic and aggressive reactions to stimulant medications.

On two different stimulants, AJ suffered from insomnia, aggression, anxiety, compulsive behaviors, paranoia and racing thoughts.  What is interesting is that studies show the same reactions in children similar to my son.

After seeing these reactions I started doing my own research (well, you know me…I did it before) and came to the early conclusion that we needed something other than a stimulant.  And we needed to find out if AJ was,  in fact, expressing bipolar behaviors.

I purchased two books: The Bipolar Child: The Definitive and Reassuring Guide to Childhood’s Most Misunderstood Disorder — Third Edition My Bipolar Child: a whole new world and Parenting a Bipolar Child: What to Do & Why My Bipolar Child: a whole new world.

As I silently flipped through the pages of information in the two books yesterday my heart sank into the depths of every part of me. It was so clear, so obvious. So painful.

So, so, so true.

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    6 Comments

  • Michelle says:

    Oh Marcie…I don’t know what to say. The only light, I think, is that if this is truly the diagnosis, *maybe* parts of the puzzle will fall into place? My thoughts are with you….

  • Gina Fagan says:

    Marcie, I’m across the street unemployed and willing to help if you need a break. AJ needs you yes but take care of Marcie first. I remember someone once told me it is like being on an aircraft and taking the oxygen first then assisting your child if you don’t noone wil survive. Breathe and Hope. Gina

  • Voni says:

    Marcie –
    It’s a tough road to walk…finding a diagnosis. I hope that docs will not only see your side, but be able to work with AJ. Sometimes they decline to dx bi-polar so young and yet he could benefit so much from early intervention…behavior modification and medication. He can be ok…I live with bi-polar and have survived – heck, flourished! Share away…
    Voni

  • Lisa says:

    My oldest son (7 now) is early onset mood disorders (bipolar) as well as ADHD. The bipolar meds have made a huge difference (he’s on Abilify) and once we had the mood swings more under control we were able to work on the ADHD and used Daytrona to help control the hyperactiveness and inability to focus. We STILL have issues (hence the reason for my last post) but things are better than they were before.

    If you ever want to talk or ask questions about the processes, feel free to email me.

  • Lisa says:

    Thanks for the comment! It is really difficult :( My son has early onset bipolar and ADHD. We’re not seeing much of the sleeping changes this time around, his psychiatrist recommended Melatonin and it’s working AWESOME. has been a huge help in the sleep dept. But he’s exhibiting more and more manic behavior….get to go to the psych again to see about an adjustment to the meds to help.

    And fight with the school. *sigh* I hate the schools.

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